| Name of Patient Organisation | Organisation Address | Country of Organisation | Date of Contract | Description of Activity | Non Financial Support | Financial Support | Fee For Service |
|---|---|---|---|---|---|---|---|
| Rare Diseases Ireland | Brunswick Street North Dublin 7 | IRELAND | 01/01/2022 | POS_RDI Round Table of Companies_2022 | - | 3 500 EUR | 0 EUR |
| Usher Syndrome Ireland | Usher Syndrome Ireland Dun Laoghaire | IRELAND | 27/05/2021 | Retina 2021_EMEA XLRP PAG Advisory Board_Usher Syndrome IE | - | 0 EUR | 500 EUR |