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Relationships with Patient Organisations 2021
Name of Patient Organisation Organisation Address Country of Organisation Date of contract Description of activity Non Financial Support Financial Support Fee For Service
Arthritis Ireland Grand Canal Quay Dublin 2 IRELAND 25/10/2021 PsA_POS_Arthritis Ireland_Dublin_2021 - 5 000 EUR 0 EUR
CLL Ireland 19 Dean Swift Road Dublin 11 IRELAND 18/06/2020 2020 - Motivational Message Idea - CCLAN - CLL-Ireland - 0 EUR 100 EUR
02/03/2021 CLL Ireland Core funding 2021 - 7 000 EUR 0 EUR
Fighting Blindness 7 Ely Place Dublin 2 IRELAND 27/05/2021 XLRP (X-Linked Retinitia Pigmentosa) Patient Advocacy Group Advisory Board_Fighting Blindness - 0 EUR 200 EUR
22/06/2021 2021_Consultancy services from Fighting Blindness on XLRP - 0 EUR 150 EUR
05/11/2021 Sponsorship of Retina Conference 5-6 November 2021 - 15 348 EUR 0 EUR
13/04/2021 Research project-Understanding Wellbeing in IDRs - 20 184 EUR 0 EUR
06/01/2021 Expanding genetic testing services for patients - 29 920 EUR 0 EUR
IPPOSI 77 Camden Street Lower Dublin 2 IRELAND 24/05/2021 IPPOSI Patient Capacity Building Programme - 2 500 EUR 0 EUR
Irish Cancer Society 43-45 Northumberland Road Dublin 4 IRELAND 02/06/2021 ICS Survivorship Conference 2021 - 10 000 EUR 0 EUR
Irish Soc Colitis/Crohns Dis Brunswick Street North Dublin 7 IRELAND 28/04/2021 FS_Disease Awareness_ ISCC_Podcasts_Dublin_April_2021 - 4 640 EUR 0 EUR
Marie Keating Foundation Lucan Lucan IRELAND 08/11/2021 POS_Oncology_MKF_podcast_Dublin 2021 - 15 000 EUR 0 EUR
Multiple Myeloma Ireland Multiple Myeloma Ireland Limerick IRELAND 27/09/2021 Haem_POS_Myeloma Ireland_Galway_2021 - 5 000 EUR 0 EUR
PHA Ireland PHA Ireland Dublin 7 IRELAND 05/07/2021 POS_PHAIre Core Funding_Jun21_Dublin - 12 000 EUR 0 EUR
Rare Diseases Ireland Brunswick Street North Dublin 7 IRELAND 23/08/2021 POS__RDI Core Funding_Aug21_Dublin - 3 500 EUR 0 EUR
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