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Relationships with Patient Organisations 2017
Name of Patient Organisation Organisation Address Country of Organisation Date of contract Description of activity Non Financial Support Financial Support Fee For Service
ADHD Foundation 151 Dale Street Liverpool UNITED KINGDOM 09/11/2017 “Janssen provided £1400.00 sponsorship for stand space at the ADHD Foundation annual conference 2017. This conference will support the education of HCPs involved in the care of ADHD through workshops, symposiums and lectures.” - 1 400 GBP 0 GBP
African Health Policy Network 196 Old Street London UNITED KINGDOM 29/11/2017 £1,000 of core funding was provided to the African Health Policy Network to support the running costs of their 20th anniversary meeting. The meeting brought together African people living with HIV from across the UK and provided a forum to discuss what matters most to them, a look at what has been achieved already and what the key issues to focus on in the future will be. - 1 000 GBP 0 GBP
Alzheimer's Research UK Granta Park Cambridge UNITED KINGDOM 07/12/2017 Non financial support was provided with the value of £247.13 for a representative to travel to and from the Patient Summit which was organised in collaboration between Janssen and National Voices. 0 GBP 0 GBP
17/11/2017 In 2017 Janssen provided non-financial support in the form of staff time to Alzheimer’s Research UK . This time was used to support understanding regarding the current HTA process. In total 2 hours were spent working on this project by Janssen staff which equates to £64.43 calculated on an average hourly rate. 0 GBP 0 GBP
23/11/2017 Janssen donated £4,000 towards a Roundtable lunch discussion in 2017 for a facilitated discussion of key topics in Alzheimer’s Disease such as research, the UK dementia strategy and keeping dementia top of the government health priority list. - 4 000 GBP 0 GBP
Anthony Nolan Heathgate Place London UNITED KINGDOM 04/09/2017 Janssen partnered with Anthony Nolan to bring to life the ‘Make Blood Cancer Visible’ (MBCV) 2017 disease awareness campaign. The aim of the campaign was to increase public awareness and education during the month of September 2017, so that we could together change the lack of insight and understanding around blood cancers amongst the UK public. The campaign focussed around an art installation, designed and created by Paul Cocksedge Studio. The installation represented the 104 individuals that are diagnosed with blood cancer every day, raising awareness and bringing to life their experiences through their own stories. The installation was located in Paternoster Square, London and was available to view from the 4th-30th September 2017. No fee was paid to Anthony Nolan to partner with Janssen on the MBCV campaign. Janssen paid the cost of travel for 6 Anthony Nolan participants, whose names were included in the installation, to travel to London for the installation opening on Monday 4th September 2017. The total cost of this travel was £867.50. Following the end of the MBCV campaign, Janssen donated 13 respective installation sculptures to Anthony Nolan. The total value of the art sculptures donated was £6,500.00 (£500.00 per name). 0 GBP 0 GBP
Bloodwise 39-40 Eagle Street London UNITED KINGDOM 04/09/2017 Janssen partnered with Bloodwise to bring to life the ‘Make Blood Cancer Visible’ (MBCV) 2017 disease awareness campaign. The aim of the campaign was to increase public awareness and education during the month of September 2017, so that we could together change the lack of insight and understanding around blood cancers amongst the UK public. The campaign focussed around an art installation, designed and created by Paul Cocksedge Studio. The installation represented the 104 individuals that are diagnosed with blood cancer every day, raising awareness and bringing to life their experiences through their own stories. The installation was located in Paternoster Square, London and was available to view from the 4th-30th September 2017. No fee was paid to Bloodwise to partner with Janssen on the MBCV campaign. Janssen paid the cost of travel for 2 Bloodwise participants, whose names were included in the installation, and their carers, to travel to London for the installation opening on Monday 4th September 2017. The total cost of this travel was £95.95. Following the end of the campaign, Janssen donated 15 respective installation sculptures to Bloodwise. The total value of the art sculptures donated was £7,500.00 (£500.00 per name). 0 GBP 0 GBP
21/11/2016 Janssen have provided Bloodwise with financial support of £50,000 in 2017 to implement a project that aims to understand current practice in the delivery of the recovery care package and to develop recommendations from this to improve patient care. Funding for 2017 is part of a 3-year partnership between Janssen and Bloodwise. - 50 000 GBP 0 GBP
04/01/2017 In 2017 Janssen provided non-financial support in the form of staff time to Bloodwise This time was used to support market research and outcome evaluation advice relating to the Recovery Package initiative. In total 7 hours were spent working on these projects by Janssen staff which equates to £225.50 calculated on an average hourly rate 0 GBP 0 GBP
BME Cancer Communities 7 Mansfield Road Nottingham UNITED KINGDOM 06/11/2017 £6,740 of funding was provided to BME Cancer Communities to support them in continuing their core activities. BME Cancer Communities work to provide support to disadvantaged communities (Black and Minority Ethnic, and low-income) affected by cancer. - 6 740 GBP 0 GBP
Cancer 52 93 Newman Street London UNITED KINGDOM 30/11/2017 Janssen have provided core funding of £5,000 to Cancer52 which helped support the following activities from Sept 2017 to Sept 2018: Production of positioning statements and reports on key topics for people with rare and less common cancers, member meetings involving stakeholder briefings, workshops and sharing of information through a variety of communication outlets and development of Public Affairs and policy initiatives across a range of policy priorities. - 5 000 GBP 0 GBP
Cancer Black Care 79 Acton Lane London UNITED KINGDOM 06/11/2017 £5,000 of core funding was provided to Cancer Black Care. This funding was used towards the general running costs of the charity as well as the continued employment of a Direct Services Manager. - 5 000 GBP 0 GBP
CLL Support Association 39-40 Eagle Street London UNITED KINGDOM 18/09/2017 Janssen have provided core funding of £10,000 to the CLL Support Association  which supports the following activities from Sept 2017 to Sept 2018:  Member conference in 2018,  website maintenance and input for administration support. - 10 000 GBP 0 GBP
CML Support Group 2 Belgrave Road London UNITED KINGDOM 04/09/2017 - Janssen partnered with CML Support Group to bring to life the ‘Make Blood Cancer Visible’ (MBCV) 2017 disease awareness campaign. The aim of the campaign was to increase public awareness and education during the month of September 2017, so that we could together change the lack of insight and understanding around blood cancers amongst the UK public. The campaign focussed around an art installation, designed and created by Paul Cocksedge Studio. The installation represented the 104 individuals that are diagnosed with blood cancer every day, raising awareness and bringing to life their experiences through their own stories. The installation was located in Paternoster Square, London and was available to view from the 4th-30th September 2017. No fee was paid to CML Support Group to partner with Janssen on the MBCV campaign. Janssen paid the cost of travel for 1 CML Support Group participant, whose name was included in the installation, to travel to London for the installation opening on Monday 4th September 2017. The total cost of this travel was £26.70. Following the end of the campaign, Janssen donated 2 respective installation sculptures to CML Support Group. The total value of the art sculptures donated was £1,000.00 (£500.00 per name). 0 GBP 0 GBP
Crohn's & Colitis UK 45 Grosvenor Road St. Albans UNITED KINGDOM 17/01/2017 - In 2017 Janssen provided non-financial support in the form of staff time to Crohn’s and Colitis UK. This time was used to enable Crohn’s and Colitis UK to share their strategy with Janssen and for Janssen to carry out some analysis of the membership survey. In total 12 hours were spent working on this project by Janssen staff which equates to £386.57 calculated on an average hourly rate. 0 GBP 0 GBP
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