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Relationships with Patient Organizations 2018
Name of Patient Organisation Organisation Address Country of Organisation Date of contract Description of activity Non Financial Support Financial Support Fee For Service
Arthrites asbl Avenue Hippocrate 10 Bruxelles BELGIUM 30/06/2018 Cette sponsorship contribue partiellement à l’amélioration du site web ainsi qu’à la réimpression de leurs brochures «Il faut bouger». - 4 000 EUR 0 EUR
CMP Vlaanderen vzw Boordeken 4 Zoersel BELGIUM 24/03/2018 cmp wil patiënten met multipel myeloom & Waldenström een houvast geven door concrete, evenwichtige en betrouwbare informatie aan te bieden. - 3 600 EUR 0 EUR
Collectif des Femmes asbl Rue Des Sports 19 Louvain-la-Neuve BELGIUM 09/11/2018 Action NYAMPINGA - Support des activités pour la journée mondiale du SIDA : campagne de sensibilisation au test de dépistage rapide (TROD). Frais d’imprimerie pour les flyers, affiches et brochures pour la semaine du 26/11 au 01/12/2018. - 3 000 EUR 0 EUR
Crohn & Colitis Ulcerosa vzw Groeneweg 151 Heverlee BELGIUM 30/01/2018 Cocreatie van brochure rond Crohn-Ibd CCV heeft als mantelzorger-organisatie inzichten in de noden van mantelzorgers en patiënten binnen het domein IBD/Crohn. Er is een grote nood in het landschap aan een brochure die antwoord kan geven op basisbegrippen rond IBD/Crohn. Deze brochure zal verspreid worden door artsen, hulpverleners en PAG’s aan patiënten en mantelzorgers. - 10 000 EUR 0 EUR
EFNA asbl Rue D'egmont 11 Bruxelles BELGIUM 19/07/2018 2018 Funding European Federation of Neurological Associations- Core funding - 10 000 EUR 0 EUR
EUFAMI Diestsevest 100 Leuven BELGIUM 21/04/2018 2017 Funding EUFAMI - 20 000 EUR 0 EUR
26/03/2018 In the frame of patient centricity approach, Janssen is going to conduct a cross-sectional study in schizophrenia to collect experience and satisfaction with treatment from patients suffering from schizophrenia, and also from their respective caregivers, clinicians and nurses. The aim of this project is also to understand the impact of treatment on the relationships between patients, caregiver and medical staff. As this project will be fully around patient’s needs, perception and feelings it is very important that EUFAMI (as representative of caregivers, the most closest persons to patients) will be involved to provide their input on design of the project, and developing the questionnaires that properly reflects the perspective of the patients and their caregivers on top of the clinicians’ priorities. Involvement of EUFAMI will provide opportunity to adjust this project to better reflect patient’s needs and also to adjust the wording of questionnaires to make it more friendly for patients and caregivers, and results more valuable for patient and family societies. This Event is connect with EV00151511 GAMIAN - 0 EUR 960 EUR
15/05/2018 Stakeholder Engagement Advisory Board May 2018 - EUFAMI - 23 EUR 1 440 EUR
22/06/2018 2018 Funding EUFAMI - Support Carer Playbook 2018 - 20 000 EUR 0 EUR
05/08/2018 2018 Funding EUFAMI - Core funding - 30 000 EUR 0 EUR
EUPATI 31, Rue du Commerce Brussel BELGIUM 20/03/2018 To provide internal training to the Janssen EMEA HIV team (refresh and overview of new data) - 500 EUR 426 EUR
06/11/2018 Patient Summit on Access_European Patients' Academy 2018 - 0 EUR 1 610 EUR
European Aids Treatment Group (EATG) Place Raymond Blyckaerts, 13 Brussel BELGIUM 06/09/2017 Janssen Hungary Cycle meeting HIV PAG presentation - 0 EUR 200 EUR
13/07/2018 2018 Funding EUROPEAN AIDS TREATMENT GROUP (EATG) - Core funding - 80 000 EUR 0 EUR
European Brain Council 11 Rue D'Egmont Brussels BELGIUM 28/04/2018 2018 Funding EUROPEAN BRAIN COUNCIL - Core funding - 20 000 EUR 0 EUR
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